Fundraising for True North Treks Young Cancer Survivors Retreat

I know I used to post a lot more online, but over the years I’ve gravitated away from the social media spotlight. I can’t say this post is initiating a full return, but I do want to mindfully come back into the sphere bit by bit. So I figured the best first way to venture back into LinkedIn posting is to talk a bit about my breast cancer and a few opportunities I’ve recently landed in that space. 

Most of you know that I was diagnosed with breast cancer in March 2021, two weeks after I turned 27-years-old. That was five years ago. And in the breast cancer community, 5-year survivorship without recurrence is usually an indicator (from medical professionals) that my chance of recurrence lessens over time. I’ll never fully be out of the woods, but I am excited that this year (in November, technically) will be the first major step toward full survivorship for me. 

I’ve been less publicly vocal about my breast cancer journey as the years have gone on, but privately, I’ve done research on programs offered to survivors as part of their healing journeys. This led me to apply to several cancer survivor retreats, and by the grace of God, I was selected for not one, but three different retreats this year. 

The first one was this past weekend, fly fishing in the middle of Missouri with 13 other wonderful breast cancer survivors and thrivers alongside an incredible group of volunteers who put on an unforgettable weekend teaching us to cast, tie flies, and fly fish for the very first time. A huge shout out to Casting for Recovery for the opportunity. 

The second and third opportunities are coming up later this summer, but I’d love to focus on opportunity #2 for this post. I will be attending a retreat with True North Treks in the UP in Michigan. This retreat is for survivors of all cancer types who were diagnosed between the ages of 18–39 along with one person of our choosing who has supported us through our cancer journey. 

True North Treks is a fully-funded experience for survivors that runs on a pay-it-forward pledge that all participants partake in. Our goal is to raise $1200 per attendee to help future survivors and their caregivers attend an experience like I’ll be doing in August. This upcoming trip was funded by past participants fundraising for future participants, and now it’s my turn to raise funds for future participants so that other young survivors may have an opportunity to attend next year. 

This 5-day trek will consist of hiking, meditation, yoga, swimming, camping, and most importantly, connection and conversation with other young survivors. It’s an opportunity that, looking back five years ago when I was in the trenches of pre-chemo IVF, chemo, surgery, radiation, and immunotherapy, I’d never have believed would be a possibility to experience. 

For moments during diagnosis and treatment, I genuinely wasn’t sure if I’d live or die. But I’ve had the blessing of surviving, the grace of living, and now, the opportunity to pay this once-in-a-lifetime experience forward for future survivors. I’ll drop the donation link below for anyone who’s interested in helping me raise funds for future attendees. I can’t wait to share the experience with you all once I’ve attended my retreat this August. 

HELP A FUTURE YOUNG SURVIVOR ATTEND TRUE NORTH TREKS!

DONATE NOW

I’ll drop info below for those of you interested in learning more about True North Treks, their mission, and how you can be involved either as a future participant or a volunteer:

Sorry, If You’ve Never Had Cancer, You Don’t Get to Celebrate Not Having Cancer

Hearing the news you have cancer is a fucking nightmare.

Hearing the news you don’t have cancer anymore is a fucking relief.

And sharing the news online is a great way to raise awareness about cancer, especially in the adolescent and young adult (AYA) community.

That said, an uncomfortable online trend I’ve noticed over the past year or so is people who have never had cancer making posts/statements about them…still not having cancer.

Yeah, I wouldn’t believe it either unless I saw it myself. And I have. At least four times in the past 12 months. What might this sound like?

For example:

  • “My mammogram came back clear! Yay for me!” And they’ve never had cancer before. 🙄
  • “I had a scare but actually it was nothing, and I don’t have cancer, haha isn’t that cool!” With the undertone of I didn’t have cancer before, either, but I also don’t now. 😵‍💫
  • Or saying they or someone they know is “cancer free” when they were seen for a benign, non-cancerous lump and were never previously diagnosed with cancer. So they can’t actually be free of cancer that they’ve never had. 😒

I know you might be confused as to how this is “bad,” celebrating not having cancer, and normally I’m a “live and let live” kind of gal, but it comes off braggadocios to celebrate something you didn’t actually overcome. How can you celebrate (publicly) “not having cancer” when you already didn’t have cancer?

It’s like telling someone whose house recently burnt down “Omg I left the stove burner on and I thought my house was going to burn down! But thank God it didn’t!” Would you do that? Would you knowingly comment some celebratory brag about something you didn’t actually endure?

I get wanting to “raise awareness” about getting your mammograms or other preventative scans and screenings for cancer, but it’s in really poor taste to brag about not having cancer when there are people out there who aren’t so “lucky” to go in and have a routine scan with no bad news.

Or when actual cancer thrivers (see: those with incurable cancer and those in active treatment) and survivors go in for scans and celebrate their clear scans as a win…

Because for them, IT ACTUALLY IS A WIN. BECAUSE THEY HAVE A HISTORY OF CANCER. So NOT having cancer *again* is something to brag about.

But you having clear scans on routine check-ups or a “scare” that wasn’t actually anything to begin with isn’t a “celebration” inasmuch as an expectation. Even if you have a family history of the disease, bragging online about not having cancer when you haven’t had it before is a REALLY WEIRD FLEX – whether you want to hear that or not. And it’s disrespectful to read for people who do or have actually had it.

Look, we’re all thrilled you’re healthy, but damn if it doesn’t feel like a slap in the face to those of us who’ve actually had cancer or are currently enduring treatment for it. We weren’t so lucky. We didn’t get to just breathe a sigh of relief and carry on with our days. And some cancer thrivers never will.

If you’re announcing your scan results because you want to “raise awareness” about cancer, you don’t need to brag about not having fucking cancer.

Instead, you can say, “Hey everyone! Remember to get your annual mammogram!” “Check your breasts on the first of the month!” “Donate to/support X fund for people undergoing cancer treatment!” Don’t make it about you not having cancer when you never fucking did.

Still feeling lost? Here are some actionable ways to help support people who actually do have cancer.